Archive | October 2013

But wait…

Always leave the people wanting more, right?  I feel Vivian is just like an infomercial.  Whenever you think you have this little one figured out, there’s always a little something more.

Vivian has scoliosis.  We first learned about it while we were in the emergency room when she had a 105° fever – almost 2 years ago.  She was incredibly weak, dehydrated, could barely sit up on her own, and they did a chest x-ray because her pulse oxygen was low.  The ER doc comes back with the news.  No pneumonia, but she has a severe curve in her spine, we need to get this looked into further, she’ll need to have rods put into her back, but she’ll eventually be fine.  As if we weren’t worried enough about her dehydration, we didn’t realize we had come to the ER to hear an orthopedic evaluation. 

We take the x-rays of her slumped over in the hospital bed to her true orthopedic doctor.  After another set, it’s determined that Vivian needs another doctor who specializes in more complex cases.  Her curve was definitely not as severe as Mr. ER doc saw, but it was worth concern. 

Fast forward a year and a half and x-rays with Dr. A show her curve has doubled to 40%.  We are then referred to a pediatric orthopedic surgeon.

I made the appointment for Friday September 13th.  13 has always been my lucky number, I figured why not!  I met the man I had become overwhelmed with emotion about from reading this article.

Dave, the realist, assures me, while waiting on Dr. Ain, that this will not be a positive appointment.  That we are going to find out which direction we need to head in with Vivian’s spine.  We are not going to hear any good news.  Her spine looks like this:


This is her sitting, with Dave and I holding her shoulders as straight as possible. 

Gina – the optimist’s good news:  she doesn’t have to get a back brace!
Dave – the realist’s reality check:  her curve is at 40% now.  When it gets to 50%,  she has to get growing rods put in her back, requiring surgery every 6-9 months until she stops growing.

We head back in January to check the progress.