Archive | April 2015

Before and After

I am grateful for everything that has happened in the last few weeks.  It was the worst thing to see Vivian in so much pain, but I know that she will benefit in the long run.  She’s done so well, but has so far to go.

I wanted to post before and after pictures – this will show how miraculous modern medicine is.  Before, her curve was at 52%, including a rotation.  After, an accurate measurement will be taken within 6 weeks post-op, but you can see the obvious improvement.


When we were in the pre-op area, the Anesthetist said that this was one of the most painful surgeries that is performed on children.  I’m glad I did not know this beforehand, as it would have added to my already high anxiety level.  Luckily, I was able to walk back with her to the operating room.  I was with her until she fell asleep, then almost 5 hours later myself and Dave were able to see her back in the operating room, while we waited for a PICU room to be available.  The thing I wanted to see most in this operating room (besides Vivi) was Dr. Ain’s step stool, which I was able to get a photo of.  What an amazing man he is.

There was a chance she could have magnetic rods “installed”, but unfortunately they did not fit.  This means surgery every 6-9 months, instead of a magnetic lengthening.  She had come through the surgery healthy, which was all that mattered.  She had two rods and eight screws installed.

The bone fusions will complete within 6 months.  Trying to get her to not twist and bend her back in the next 6 months is going to be so much fun. There are several things she will need to re-learn: how to bend over and bend with her knees and hips, instead of her back; how to stand up from laying/sitting in the middle of the floor/bed; sitting down to and standing up from a chair. Then of course still working on the skills she has not developed yet such as independent up/down stairs, jumping, running, etc. Patience is a virtue which I am still learning!

I am still working on finishing thank you calls/texts/messages/notes, but please know that our family appreciates all the kind words, thoughts and prayers that Vivian has received. They have not gone unnoticed.

This entry was posted on April 19, 2015. 1 Comment